Cavernoma Alliance UK & the Little Princess Trust

Update:

Nicola very bravely had all of her hair shaved off on Tuesday evening, with friends & family there to support her…

nicola evans

Looking very glam, with a glass of well-needed wine in her hands, Nicola went from long hair, to short, to none…!!!  At the time of this post going live, Nicola has raised over £2800 for her charity & her beautiful hair will be used for making wigs for children with living with cancer – well done Nicola from all at Mojomums!

 

30 year old Nicola Evans has decided to shave her head for 2 amazing charities this year.  Here is her story:

“I guess I should start by explaining who Freddie is. Freddie is a large 4cm Cavernoma in the middle of  my brain. Cavernoma’s are a cluster of malformed blood vessels that look like raspberries, which can grow and leak causing many neurological disorders. Mine has now caused me one too many strokes, vision loss and too many hospital stays.  So after my 6th stroke and many discussions with an amazing brain surgeon, my friends, family and boyfriend, it has been decided I will have an operation to remove Freddie in the hope it will stop these strokes. Freddie is being evicted and I think he knows it as he has been quiet this month! In my journey I discovered Cavernoma Alliance UK and they have been a lifeline to me. To finally find and talk to others with this condition has been wonderful. To hear their stories and journeys has helped me come to terms with my own. So I would like to give back and raise some money for them.

Even though I do not need to shave my head for surgery I have decided I would like to. I know Christmas is coming up but any amount no matter how small can mean the world of difference to a small charity like CAUK and the awareness is so important for rare disease sufferers. I have teamed up with, Espiritu Salon and Spa, Battlers Green Farm, Radlett who have kindly offered to do the headshave for me. I will then donate the hair to Little Princess Trust. So 2 amazing charities can benefit.”

Cavernoma Alliance UK aims to provide a support group for those with cavernoma through events such as an annual forum in London and a mailing list. It also aims to makes the general public aware of cavernoma

The Little Princess Trust provides real-hair wigs to boys and girls across the UK and Ireland that have sadly lost their own hair through cancer treatment and relies solely on the efforts of enthusiastic community fundraisers.  Singer Jessie J recently shaved her head & donated her hair to this wonderful charity.

Everyone at Mojomums wishes Nicola the best of luck with her operation and head shave – if you would like to donate, you can do so through Nicola’s JustGiving page here

 

For more information about how Mojomums may be able to help you raise awareness for your chosen charity click here.

 

2 Responses to Cavernoma Alliance UK & the Little Princess Trust

  1. Nicola Evans says:

    Thank you to Mojomums for your support.

  2. Sally says:

    You look amazing x

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